New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)

Carlozzi, N. E.; Downing, N. R.; McCormack, M. K.; Schilling, S. G.; Perlmutter, J. S.; Hahn, E. A.; Lai, J. -S.; Frank, S.; Quaid, K. A.; Paulsen, J. S.; Cella, D.; Goodnight, S. M.; Miner, J. A.; Nance, M. A.

期刊名称Quality of Life Research
作者Carlozzi, N. E.; Downing, N. R.; McCormack, M. K.; Schilling, S. G.; Perlmutter, J. S.; Hahn, E. A.; Lai, J. -S.; Frank, S.; Quaid, K. A.; Paulsen, J. S.; Cella, D.; Goodnight, S. M.; Miner, J. A.; Nance, M. A.
卷第25卷
期第10期
印刷ISSN0962-9343
电子ISSN1573-2649
文件大小728.12KB
发表时间2016-10-8
DOI10.1007/s11136-016-1354-y
页码2403-2415

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New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)