![New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)]()
New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)Carlozzi, N. E.; Downing, N. R.; McCormack, M. K.; Schilling, S. G.; Perlmutter, J. S.; Hahn, E. A.; Lai, J. -S.; Frank, S.; Quaid, K. A.; Paulsen, J. S.; Cella, D.; Goodnight, S. M.; Miner, J. A.; Nance, M. A. · Quality of Life Research · 2016